Anthony Byrne MP, Federal Member for Holt, last Saturday was nominated by local resident Julie Paull to complete the ALS Ice Bucket Challenge. Julie’s husband Rex Paull recently passed away from Motor Neurone Disease (MND).
According to Julie Paull, ‘MND is the most horrible of diseases a person can get it robs you of the ability to Move Speak Eat And eventually Breathe. Our lives were forever changed with the three little letters MND. There is no cure and no treatment.’
‘I wish to thank Anthony Byrne MP and also the Casey Community who have been very supportive for example the Cranbourne 1st Scout division did the challenge last Friday in honour or my husband as have several local and non-local people,’ said Ms Paull.
Motor Neurone Disease (MND) is a neurological disease that affects over 350,000 of the world’s population, and kills over 100,000 every year. MNDAV produces a range of information and resources to assist and inform people living with MND, carers, families, friends and health professionals.
The Ice Bucket Challenge for ALS/MND is a social media campaign that was initiated by Pete Frates, a former Boston College captain who is living with motor neurone disease (MND) in the US. Since Peter Frates posted his challenge online, the Ice Bucket Challenge quickly went viral and is now spreading across Australia’s MND, sporting and entertainment communities.
“I only accepted this challenge after I received Julie’s message nominating me and hearing the tragic story of Julie’s husband who she lost due to MND. I accepted the challenge to assist Julie in raising awareness of MND and to let Julie and her family know how much I appreciate their courage and their efforts to combat MND,’ said Mr Byrne.
After undertaking the challenge Anthony Byrne MP nominated Kevin Rudd, Charlie Rimmer – Manager of Westfield Fountain Gate & Kirk Edwards – CEO of Village Cinemas – Exhibition.
To donate to Julie’s MND team directly visit https://www.mycause.com.au/page/80113/thepaullfamily
Media Enquires: Daniel White (03) 9796 7533.